Research Topic/Theme: Basic Science, Health Systems, Policy and Guidelines
Health Areas: Patient engagement
Share Your Voice: Canadian patients perspectives on data sharing survey
Expected Study End Date:
June 14, 2026
We’re looking for people living in Canada who
have interacted with the healthcare system to
share their opinion on data sharing!
We are conducting a bilingual online survey for Canada-based people
who have interacted with the healthcare system to understand their
opinions on sharing individual-level data collected during a) clinical
care; and b) participation in research studies.
• We will examine perceptions of risks and benefits, patients’ willingness
to share data, and which types of data, and in what circumstance, people are most willing to share.
Location
Online
Principal Investigator
Kelly Cobey
University of Ottawa
University of Ottawa Heart Institute
Compensation
Yes
A chance to win one of three $100 gift cards for completing the survey
Research Alignment
Develop a national health systems strategy for incorporating postpartum cardiovascular care into existing prevention care models
